Lesch-Nyhan Disease - European Federation
European patient representatives groups joining forces
against Lesch-Nyhan Disease
Association Lesch-Nyhan Action (LNA) - FRANCE
LND Famiglie Italiane ONLUS - ITALY
Asociación del Síndrome Lesch-Nyhan España - SPAIN
Lesch-Nyhan Zentral Europa - AUSTRIA
between families of patients suffering from
To collaborate with doctors, scientists and researchers working on Lesch-Nyhan disease to
help understand the disease and find an appropriate treatment
To inform a larger public of the existence of Lesch-Nyhan disease and to
ease access to the current knowledge
about this rare disease.
promote, defend, and facilitate the social integration
of people suffering from Lesch-Nyhan disease.